Authors: Daniela Moreira, Amber Angell
Faculty Mentor: Amber Angell
College: College of Public Health and Health Professions
There is increasing evidence of ethnic and gender disparities in Autism Spectrum Disorder (ASD) identification and receipt of services. Compared to White males, Latino children and girls are both more likely to receive a delayed diagnosis and less likely to receive high-quality services. Little is known, however, about Latina girls with ASD, including how their ‘pathway to a diagnosis’ compares to non-Latina White girls. To address this gap, this collective case study draws upon interviews with four families from two larger qualitative studies investigating ASD disparities. The purpose of this study is to compare the autism diagnosis and services experiences of three Latino families and one non-Latino White family of girls with ASD. Two researchers coded seven interviews using thematic and narrative analysis. We identified three themes: 1) The Latino cases involved extended family members as both barriers and facilitators to the ASD experience, while the non-Latino case had little extended family involvement; 2) The Latino cases involved a tension between specialized ASD knowledge and culturally-influenced stigma around disability; 3) All cases suggest a female ASD phenotype that differs from the traditional ASD presentation. We conclude with recommendations for improving support for Latino families with girls with ASD.